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About Annie

About Annie

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01 - Exploratory Ultrasound at Children's Hospital

01 - Exploratory Ultrasound at Children's Hospital

January 22, 2010 - Annie went in for an ultrasound to check for blocked bile ducts or signs of injury.  Still a mystery... no signs of anything wrong except extremely elevated liver enzyme and bilirubin numbers.

02 - Stickers for a Brave Girl

02 - Stickers for a Brave Girl

She has been so brave going through test after test, and poke after poke!

03 - Doctor's Visit - Pediatric Associates in Factoria

03 - Doctor's Visit - Pediatric Associates in Factoria

January 25, 2010 - At the doctor's office again, trying to figure this all out!

04 - More Blood Draws

04 - More Blood Draws

January 27, 2010 - She's getting more yellow.  What is happening to Annie?

05 - Annie's 6th Birthday

05 - Annie's 6th Birthday

January 28, 2010 -  Dr. Murray at Seattle Children's Hospital wanted to do a biopsy to try to get to the bottom of what was happening.  It was scheduled right on Annie's 6th birthday.  We had a little party for her the night before.  Notice the yellow in her eyes!

06 - Birthday Party

06 - Birthday Party

January 28, 2010 - Trying to enjoy the evening...

07 - ((Hugs))

07 - ((Hugs))

08 - Annie's First Liver Biopsy

08 - Annie's First Liver Biopsy

January 29, 2010 - Annie's 6th Birthday - Annie arrived at Seattle Children's Hospital for another ultrasound and biopsy.  We were so anxious to find out the results since all the viruses and diseases tested for through blood labs and urine tests were negative.

09 - Admitted to ICU

09 - Admitted to ICU

February 3, 2010 - The biopsy gave us no new information (other than that the problem was not an autoimmune disease).  Annie became very sore and VERY yellow over the next couple of days.  She was admitted to ICU where it was determined she was in Acute Liver Failure and needed an immediate liver transplant.  Here is our neighbor, Nadia, visiting and playing with Annie the day before the surgery.

10 - Playing to Pass the Time

10 - Playing to Pass the Time

We were informed that a matching deceased liver donation came through at the last minute (after testing Mom for a living donor surgery).  The transplant was scheduled for the morning of February 4th.

11 - Our Sweet Yellow Baby

11 - Our Sweet Yellow Baby

Here is Annie wearing a crown made by a sweet neighbor and holding a book made by her Kindergarten classmates to cheer her up.

12 - A Visit from Mrs. Steelsmith

12 - A Visit from Mrs. Steelsmith

Annie's Kindergarten teacher, Mrs. Steelsmith came for a visit that afternoon.

13 - Aunts to the Rescue

13 - Aunts to the Rescue

Aunt Wendi from Vancouver, WA and Aunt Carhelia from St. George, UT came to take care of Megan and Chloe that night so Mom and Dad could stay with Annie as doctors and surgeons prepared for her life-saving surgery.

01 - Recovering

01 - Recovering

February 5, 2010 - Annie's liver transplant surgery lasted 11 hours and 59 minutes.  It was performed by Dr. Healy and Dr. Dick at Seattle Children's Hospital.  In addition to her transplant, they had to perform a procedure called a Roux en Y to take care of an extra bile duct on the donor liver.

02 - Favorite Nurses

02 - Favorite Nurses

The nurses took such great care of Annie!

03 - Aunt Carhelia Visiting

03 - Aunt Carhelia Visiting

Aunt Carhelia and Mom on post-op day 2.  (Annie is eating ice chips - no food allowed yet)

04 - Washing Hair Right in the Bed!

04 - Washing Hair Right in the Bed!

February 6, 2010 - On this day, Grandma Chase came to visit Annie at the hospital.  We decided to wash Annie's hair.  We used a suction tube to suck up all the water and lots of pads under her head.

05 - Out of Bed in Under 48 Hours

05 - Out of Bed in Under 48 Hours

February 6, 2010 - It was not easy, but we got Annie out of her bed and into a rocking chair less than 48 hours after her transplant.  Her nurses were so proud of her!  Each day the "yellow" slowly but surely disappeared.

06 - Day 3 Post Op

06 - Day 3 Post Op

February 7, 2010 - All done with ICU!  Annie was ready to be transferred to the surgical floor.

07 - Transferring to a Wheelchair

07 - Transferring to a Wheelchair

This took a very long time, but we finally got her packed up and ready to leave the ICU.

08 - Annie's New Room on the Giraffe Floor

08 - Annie's New Room on the Giraffe Floor

February 7, 2010 - Big Sister Megan visited on this day.  Annie finally made it to her new room and a much more comfortable bed.

09 - Dr. Healy

09 - Dr. Healy

Annie with Dr. Patrick Healy -- the surgeon who performed her life-saving miracle! What a great name for a doctor :)

10 - Dr. Karen Murray

10 - Dr. Karen Murray

Dr. Murray is the lady who ordered Annie's first biopsy and later admitted her to the ICU.  And look, Annie finally got rid of that feeding tube!!

11 - Vicki Kuiper

11 - Vicki Kuiper

Vicki is our transplant coordinator nurse.  We have the best team!

12 - Dr. Horslen

12 - Dr. Horslen

Here is Annie with Dr. Simon Horslen who is a liver specialist (hepatologist) and has performed Annie's biopsies.

13 - Annie and Daddy

13 - Annie and Daddy

Mom and Dad traded off -- Mommy by day; Daddy by night

14 - Day 4 Post Op

14 - Day 4 Post Op

February 8, 2010 - Annie felt good enough to go for a ride in her wheelchair.  We took her on a tour of Children's Hospital.  There is so much to see -- what a great place!

15 - Annie and Mom

15 - Annie and Mom

Mom loves her Baby Annie!!

16 - Feeling Good Enough to Color

16 - Feeling Good Enough to Color

Still day 4 post op.  Annie is starting to feel more like herself -- ready to color and do activities

17 - Day 5 Post Op

17 - Day 5 Post Op

Grandpa Rowan and Grandma Marilyn came to visit and help out with Annie's sisters at home.

18 - Soup from Home

18 - Soup from Home

Mom brought some soup from home because the hospital's soup was "yucky" according to Annie.  Here she is with our social worker, Amal.

19 - First Walk

19 - First Walk

February 10, 2010 - Annie took her first shower today and took her first walk around the unit VERY slowly.

20 - Weighing In

20 - Weighing In

She walked down the hall to the scale.  She was weighed every day.

21 - Sweet Dreams

21 - Sweet Dreams

Healing is hard work!

22 - Day 6 Post Op

22 - Day 6 Post Op

February 10, 2010 - Here is Annie working on her class Valentines.  She was beginning to feel so much better!

23 - Day 7 Post-Op

23 - Day 7 Post-Op

Here is Annie with Dr. Keli Hansen, a transplantation specialist.  This was the day Annie got to go home!

24 - Training on Medicines

24 - Training on Medicines

February 11, 2010 - Annie posing with the pharmacy specialist, Jennifer, who trained Mom and Dad on how and when to give Annie her medicines.  We had to do it ourselves for a 24-hour period before Annie could be discharged.

25 - Gifts!

25 - Gifts!

Annie accumulated quite a few gifts during her stay

26 - Time to Go!

26 - Time to Go!

February 11, 2010 - Here a nurse is removing her IJ in her neck.  Dr. Andre Dick is the other surgeon who performed Annie's transplant (along with Dr. Healy)

01- Grandma Chase Our Helper

01- Grandma Chase Our Helper

Grandma came to help for two weeks.  We don't want her to leave -- EVER!

02 - All Packed Up and Ready to Go Home

02 - All Packed Up and Ready to Go Home

February 11, 2010 - Annie was SO ready to get out of the hospital and back to normal life.

03 - Waiting While Dad Gets the Car

03 - Waiting While Dad Gets the Car

Annie left with a "few" more belongings than what she arrived with.  The balloons were from one of her Kindergarten friends, Allie.

04 - Loading Into the Car

04 - Loading Into the Car

It took awhile because Annie was still in quite a bit of pain!

05 - Walking to the Front Door

05 - Walking to the Front Door

Everyone was so excited to see Annie and vice versa!

06 - Welcome Home Annie!

06 - Welcome Home Annie!

We missed you so much!

07 - Playing Instead of Resting

07 - Playing Instead of Resting

Annie played for 4 hours when she got home.  The longest she had been out of bed in the hospital was maybe 20 minutes!

08 - Still Playing

08 - Still Playing

Annie working on a painting project from a friend who brought us dinner that night.

09 - Relaxing with Grandma Marilyn

09 - Relaxing with Grandma Marilyn

There was a lot of movie watching the week Annie came home.  Chloe shares a room with Annie and liked to snuggle up to watch movies too.

10 - Grandma and Annie

10 - Grandma and Annie

Grandma Chase took such good care of us for two weeks!

11 - Annie on Valentine's Day

11 - Annie on Valentine's Day

It was great to be home in time for Valentine's Day!

13 - Wrapped in a Snuggie

13 - Wrapped in a Snuggie

Out of the shower and all wrapped up in the Snuggy Mrs. Steelsmith gave her.

12 - A Visit from Mrs. Steelsmith

12 - A Visit from Mrs. Steelsmith

Annie's Kindergarten teacher came over to bring class Valentines and a special present.

14 - Clinic Visit with Dr. Reyes

14 - Clinic Visit with Dr. Reyes

Annie with Dr. Jorge Reyes at her first clinic appointment. This man has performed more than 1,000 pediatric liver transplants! He is also the surgeon who removed the donor's liver and prepared it for Annie.

15 - Many Many Stitches

15 - Many Many Stitches

Be proud of that scar, Annie!

16- A Closer Look

16- A Closer Look

17 - Even Closer -- Ouch!

17 - Even Closer -- Ouch!

01 - A New Interest in Medical Care

01 - A New Interest in Medical Care

February 20, 2010 - My girls received doctor costumes from their Aunt Laurie.  They had a blast taking turns being "doctor and patient."

02 - Playing Surgeon

02 - Playing Surgeon

03 - Cool Plastic Bandaids

03 - Cool Plastic Bandaids

04 - Too Much Fun!

04 - Too Much Fun!

05 - Visiting Classmates

05 - Visiting Classmates

February 22, 2010 - Annie really wanted to go to school on the "hundredth day of school" to show her friends her alien project with 100 eyeballs.

06 - Alien Project with 100 Eyeballs

06 - Alien Project with 100 Eyeballs

07 - Reading a Story to the Class

07 - Reading a Story to the Class

She got to read a story she wrote about a Super Baby to the class.  It was really funny :)

08 - Kindergarteners on the 100th Day of School

08 -  Kindergarteners on the 100th Day of School

09 - Know Your Organs

09 - Know Your Organs

Annie is very interested in all the organs and what they do.

10 - Stiches are Out

10 - Stiches are Out

On February 23, 2010 Annie got her stitches out.  Kind of.  The doctor pulled out half of them while she screamed, and then he suggested she take the others out on her own.  The scabs were holding some of them really tight, so she soaked in the tub for awhile and was able to get 11 more out.  The next day she pulled out the last three.

11 - Looking Good!

11 - Looking Good!

She was so happy that she got them all out on her own; she didn't want any more doctors doing things that hurt!

12 - Close Up

12 -  Close Up

14 - School at Home with Mrs. Koehler

14 - School at Home with Mrs. Koehler

Annie is enjoying her time with Mrs. K who is tutoring her in reading and writing.  Mom is helping with math and other subjects.

13 - Mommy's Helpers

13 - Mommy's Helpers

Christina Larson helped out with the kids for a couple of weeks.

01 - March 5th - Ultrasound Again

01 - March 5th - Ultrasound Again

March 5th 2010 - Annie's enzyme numbers were elevated at the last two clinic appointments, so Dr. Horslen decided it was necessary for Annie to return for an ultrasound and biopsy to check for rejection.

02 - Dressed and Ready for the Biopsy

02 - Dressed and Ready for the Biopsy

At least she was positive about having another biopsy.  She was excited about having as many orange popsicles as she wanted afterward!

03 - Playing with Her New Doll

03 -  Playing with Her New Doll

Aunt Laurie sent Annie a doll made in Germany with removable organs.  Even the doctors thought it was amazing and were playing with it!

04 - Erwin

04 - Erwin

Can you name all the organs?

05 - Passing the Time

05 - Passing the Time

It's a good thing we brought some activities; sometimes the wait can be long!

06 - All Done with the Biopsy

06 - All Done with the Biopsy

Now for the treat!  Annie didn't wake up in any pain   It was determined that she did have some rejection and that she would have to stay for another 4 days to receive Prednisone treatments through an IV.

07 - Family Night at the Hospital

07 - Family Night at the Hospital

Here we are hanging out with Annie in her room.

08 - Ready for Bed

08  - Ready for Bed

It might be harder to stay at the hospital when you feel good.

09 - Sleep Tight

09 - Sleep Tight

Our friend Ling Hilton stayed 2 of the nights with Annie so Dad could go to work and Mom could get the other girls off to school.

10 - Seattle Children's Hospital Playroom

10 - Seattle Children's Hospital Playroom

Wow, we didn't realize there was a playroom on the 2nd floor.  This was a great place to spend time in between resting!

11 - Even Mom Got to Play

11 - Even Mom Got to Play

12 - So Much to Do

12 - So Much to Do

13 - Teaching Mom to Play Chess

13 - Teaching Mom to Play Chess

14 - A Visitor/Helper!

14 - A Visitor/Helper!

Dad had to go out of town for a week, so Mom's friend Sharon Weeks came to stay.  She arrived the day Annie was discharged from the hospital.

15 - Staying Safe

15 - Staying Safe

Annie's immune system is even more compromised now that her anti-rejection medicines have been increased and she is on a steroid.

16 - Aunt Lyn Visits

16 - Aunt Lyn Visits

Aunt Lyn came to visit and help out after Sharon left!

17 - Families are Wonderful

17 - Families are Wonderful

Aunt Lyn stayed until Daddy got back.  We had a lot of fun!

18 - Home in Time for St. Patrick's Day

18 - Home in Time for St. Patrick's Day

After Annie got home, we went to another clinic appointment and found out her numbers were elevated AGAIN.  So she had to return to the hospital for another ultrasound and increase her anti-rejection medicine.  Then her numbers came back down again.  We were so glad to have Annie home!

01 - Here We Go Again - Biopsy #3

01 - Here We Go Again - Biopsy #3

March 24, 2010 - Back at Children's for yet another biopsy and ultrasound.  Annie's enzyme numbers jumped up by almost 200 points.  So the doctors wanted to check for rejection again.

02 - Not So Nervous This time

02 - Not So Nervous This time

Annie is getting used to the procedures, so she's content to kick back and keep herself busy while she's waiting.  The hosptial was so full on this day that when she was finished, we had to wait over 6 hours to get her own hospital room.

03 - Giraffe Floor

03 - Giraffe Floor

Annie finally got a room!

04 - Keeping Busy

04 - Keeping Busy

Annie LOVES to post things to her blog and make silly Jib Jab movies to post on people's Facebook pages.

05 - Such a Good Sport

05 - Such a Good Sport

Every day is an adventure.  We call all this stuff "The Adventures of Annie."

06 - Hospital Playroom

06 - Hospital Playroom

We got to paint wooden cars!

07 - Hospital Playroom

07 - Hospital Playroom

... and paint lots of pictures

08 - Hospital Playroom

08 - Hospital Playroom

Annie played X-Box games, Lincoln Logs, and cars with this cute little girl.

09 - Hospital Playroom

09 - Hospital Playroom

When the results came back, there was no rejection!  Her elevated numbers may have been from high drug levels, a cold, or the beginnings of a fatty liver condition (which may be caused by the steroids).  They discharged us on the 25th of March in the late afternoon.

Annie Rowan

Annie Rowan

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01 - Making the Apples for Hillcrest Preschool Carnival

01 - Making the Apples for Hillcrest Preschool Carnival

09 - Annie and the Big Cupcake She Won

09 - Annie and the Big Cupcake She Won

02 - Hillcrest Carnival Volunteers

02 - Hillcrest Carnival Volunteers

03 - Hillcrest Carnival Volunteers

03 - Hillcrest Carnival Volunteers

04 - Hillcrest Carnival Volunteers

04 - Hillcrest Carnival Volunteers

05 - Hillcrest Carnival Volunteers

05 - Hillcrest Carnival Volunteers

06 - Hillcrest Carnival Volunteers

06 - Hillcrest Carnival Volunteers

07 - Happy Sisters at the Hillcrest Carnival

07 - Happy Sisters at the Hillcrest Carnival

08 - Silly Rowan Sisters

08 - Silly Rowan Sisters

09 - Happy Mama

09 - Happy Mama

10 - Carnivals are so much fun!

10 - Carnivals are so much fun!

11 - Annie prefers marshmallow pops with no caramel!

11 - Annie prefers marshmallow pops with no caramel!

12 - With Richelle who made all the suckers!

12 - With Richelle who made all the suckers!

20 - Home after a very fun and sugar filled night

20 - Home after a very fun and sugar filled night

14 - Yummy!

14 - Yummy!

15 - Our awesome volunteers

15 - Our awesome volunteers

16 - Working hard

16 - Working hard

17 - Our caramel apples are amazingly delicious!

17 - Our caramel apples are amazingly delicious!

19 - Hard little workers having fun

19 - Hard little workers having fun

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